Resources for Dementia
Endorsed by Dr. Tann, this newsletter entitled Perspectives 2.0 is an educational and consulting framework by revisionist gerontologist Sonya Barsness. It is designed to shift the paradigm of how society views and supports people living with dementia. It advocates for person-centered dementia care and empowering individuals to live with dignity and meaning.
AARP travels to Valdosta, Georgia for a feature story about FTD. The article also highlights the Bruce Willis story as it coincides with the journey of the FTD of Dr. Debra and Mr. Chris Tann.
Calling All Voices is an incredible introduction of 4 communities speaking truth to power about their dementia journey.
These heartwarming and sometimes heart wrenching stories will educate, encourage, and empower you as a layperson, caregiver/partner, or as a person living with dementia. Conversation facilitators included, Chris Covell (LGBQT), Jessica Luh Kim (AAPI), Paula Muller (Latino/Latina) and yours truly, Debra Tann (Black). It was my honor to collaborate with all stakeholders during this project. Each of you have forever influenced and left an edible sketch on my heart and mind.
Dr. Debra Tann, Calling All Voices Project Manager
Dementia Solutions
The Living Well with Dementia Toolkit bridges the critical gap between healthcare systems and the lived experience of people impacted by dementia.
Dr. Tann had the honor to serve on the inspiring development team of this incredible resource.
Dr. Tann is moving the needle at the local, state, national and international level featuring her Brain Health advocacy work.
Although Alzheimer’s is the most prevalent; she is also an ally for those living with Frontotemporal, Lewy Body, Vascular, and Parkinson’s disease dementias.
Hence, one of America’s oldest publications, “Scientific American” which has featured the likes of Albert Einstein, is now spotlighting Valdosta (page 55). This special edition speaks to the soaring burden of dementia.
https://www.scientificamerican.com/custom-media/the-new-age-of-alzheimers/
Are you concerned about your Memory?
Blacks and Hispanics are at the top of the food chain for dementia. Let’s change the trajectory with clinical trial participation.
Interested in Clinical Trials?
View this 57 minute educational video below featuring a clinical trial overview, dynamic Q/A segment as renown presenter, Dr. T. MaGee-Rodgers, Director of Recruitment & Strategic Initiatives at Global Alzheimer’s Platform explains clinical trials.
https://home.mycloud.com/
FreedomCare
Through Medicaid, if you live with your caregiver, they can get paid to take care of you!
BrightFocus Annual Report
Department of Aging Pennsylvania FTD Conference
GCBH
The Global Council on Brain Health, which is a collaborative of AARP paid homage towards the advocacy work by Reminiscent in Valdosta, GA.
This recognition can be located on page 30 #4.
Journalistic Powerhouse Meryl Comer and Dr. Debra Tann
In this episode of Brainstorm, host Meryl Comer speaks with author @DebraonDementia. about juggling her advocacy work while caring for her husband with #dementia at home.
A Conversation with Black Male Caregivers
Slide Deck – Black Male Dementia Caregivers
Brain Health, Memory Loss & Dementia
Frontotemporal Dementia at the AFTD Conference 2023 in St. Louis, Missouri
Calling All Voices
Calling All Voices series provides the opportunity to hear and learn from the diverse perspectives of people living with dementia and their care partners from communities that are marginalized, underserved, and unheard.
Black Community Voices
Your voice is needed. | Valene Campbell
It was important to take time for myself. | Will Smith
I decided to get involved. | Terrie Montgomery
It is very important to get information out about living with dementia. | Chris Tann
It is not a Black or a White disease. Dementia affects everyone. | Gretchen Carter Lowery
LGBTQ+ Community Voices
Life doesn’t stop because you have dementia. | Susan Balkman
We’re all strong, we just don’t realize it at times. | Patrick Ettenes
There is time to live now. | Melissa Hamkins and Meredith Hunt
A story to share with the world. | Mary Beth Wighton and Dawn Baxter
I want to educate people. | John-Richard Pagan
The importance of having a community. | Brian VanBuren
Latino Community Voices
Everyone needs to know about dementia, including children. | Ana Castaneda
How I became comfortable with this journey. It certainly took a lot of effort. | Carlos Olivas
hrough my art, I want to shift how we look at the disease. | Juan Carlos Zaldivar
I need to share so people are aware. | Myra Garcia Solano
I’m not just another number…and a family story. | Yoli Alvarez-Bell & Heriberto Magana
Asian Community Voices
It Is Just What You Do. | Jessica Hsieh
Understanding the Person First. | Mario Gregorio
It is Okay to Say ‘I Need Help’. | Neela White
A Sense of Belonging. | Cris Charbonneau and Ron Beleno
Everybody’s Journey Is Different. | Mary Huang and Peter Wei
It’s Okay to Talk About It. | Mario Gregorio, Cris Charbonneau and Peter Wei
Crisis Guide for Caregivers
Pathways to Well Being with Dementia
Healthy To A Hundred: Karen Love of Dementia Action Alliance On 5 Things You Need To Live A Long, Healthy, & Happy Life
Brain Health Tips for Successful Aging!
What is Young-Onset Dementia? In this 4 minute clip, explore its effects.
Brain Info Live features experts, film clips, and healthy living tips for viewers, living with, or supporting those with dementia.
Dementia Words Matter: Guidelines on language about dementia
https://dementiavoices.org.uk/wp-content/uploads/2015/03/DEEP-Guide-Language.pdf
What everyone should know about Frontotemporal dementia (FTD)- diagnosis, treatment, and managing the condition with Sharon Hall
Dr. Debra Tann Untangles The Race of Dementia: Care, Cure and Disparity
Listen to Dr. Debra Tann’s podcast featured on alzauthors.com
Once you are on the page, you will need to scroll down the list of podcasts to find Dr. Debra Tann Untangles The Race of Dementia: Care, Cure and Disparity podcast
Click Here to go to the podcast page.
Brian Van Buren: Early detection is key when it comes to Alzheimer’s
Early detection is key when it comes to Alzheimer’s. We are thankful for Brian Van Buren for sharing his story.
The platform is Brain Guide from @usagainstalz (on Twitter) and it is a free platform that provides you with the knowledge and resources to take the best next steps in managing your own or your loved ones brain health.
Click Here to listen to Brian’s story.
Video on The Race of Dementia by Debra Tann, Ed.D.
Your Eyes and Brain
Brain Info Live Interview with Dr Debra Tann and Dr. Susan Wehry
Watch Brain Info live – Dr. Debra Tann interviews Dr. Susan Wehry, MD – Chief of Geriatrics, University of New England.
Calling All Voices
The “Calling All Voices” project was a collaboration with Dementia Action Alliance, Otsuka Pharmaceuticals, and the High Lantern Group. The aforementioned organizations wanted to hear the Black perspective as it relates to dementia. I, (Debra Tann) was called upon as a dementia consultant to facilitate all interviews for the project. We experienced incredible dialogue which has manifested in this spot on White Paper entitled “Calling All Voices.” It was my distinct honor to interview all participants. I laud their transparent courage to share their personal journey to educate the masses on dementia. Stay tuned for the podcast version of “Calling All Voices.”